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Sample of Informed Consent
Data Collection Sheet


Patient Data Request
Click here to download this form as a pdf

Atypical Teratoid/Rhabdoid Tumor (AT/RT) Patient Data Request

 

Registry ID # __________________________________________

Patient initials _________________________________________

DOB ________________________________________________

1� tumor site _________________________________________

Date of Diagnosis _____________________________________

Age at Diagnosis (in months) ____________________________

Gender ________

Race __________

Institution _____________________________________________

Pathologist ___________________________________________

Phone # _____________________________________________


Oncologist ___________________________________________

Phone # _____________________________________________

Labs/Clinical Info Sent to Registry?
Yes No
Notes

Radiology Reports

� �

 

Operative note(s)

� �

 

Pathology Reports(s)

� �

 

Cytogenetics Report

� �

 

Molecular analysis (INI1)

� �

 

Electron Microscopy Report

� �

 

Discharge summary(s)

� �

 

Family history

� �

 

Treatment records

-Include dates & dosages

� �

 

Current status/date

� �

 

Other: ____________________

� �

 


Send patient clinical information to:
Joanne Hilden, M.D./Sharon Meerbaum, B.S., C.C.R.P.
The Children's Hospital at the Cleveland Clinic
Dept of Pediatric Hem/Onc S-20
Cleveland Clinic Foundation
9500 Euclid Avenue
Cleveland, OH 44195
Phone: 216/444-8407 or 216/444-8640
Fax: 216/444-5925




 

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