Atypical Teratoid /Rhabdoid tumor(AT/RT) of the central
nervous system (CNS) is an aggressive malignancy of childhood. This
rarity has resulted in a lack of clear treatment guidelines and
multiple approaches have been taken. Therefore, a registry was created
to collect information on these tumors. The purpose of this website
is to provide information on this rare childhood tumor to families
and physicians.
The AT/RT registry is a voluntary, free, central database,
which collects information about the clinical course, therapy, and
outcomes of patients diagnosed with AT/RT. Through the collection
of this information, the medical and scientific community will have
a better understanding of this tumor. Information from the registry
combined with information obtained from prospective studies will
help develop optimal treatment approaches for children diagnosed
with these tumors.
Contact Information Principal Investigator:
Joanne M. Hilden, M.D.
Chair, Department of Pediatric Hematology/Oncology/Desk S20
Medical Director, Pediatric Palliative Care
The Children's Hospital at The Cleveland Clinic
9500 Euclid Avenue
Cleveland OH 44195
Phone: 216-444-8407
Fax: 216-444-5925
E-mail: Joanne Hilden, M.D.
Data Coordinator Sharon O. Meerbaum, BS CCRP
Research Program Coordinator
Department of Pediatric Hematology/Oncology Desk/S-20
The Children's Hospital at the Cleveland Clinic
9500 Euclid Avenue
Cleveland, OH 44195
Phone: 216/444-8640
Fax: 216/444-3577
Email: Sharon Meerbaum, B.S., C.C.R.P.
