RESOURCE GUIDE FOR RENAL/KIDNEY DISEASE 

On this page: 

http://www.noah-health.org/

American Association for Kidney Patients 1-800-749-AAKP

Provides education, support, and advocacy services to kidney patients and families.

Distributes AAKP Bulletin (newsletter)

American Kidney Fund 1-800-638-8299

Provides funds to needy kidney patients. Grants to help pay for medication, transportation, special diets, supplies. Can help pay for dialysis while on vacation.

"Attends to the well-being of needy people stricken with end-stage-renal-disease through subsidized hemodialysis treatment."

Fun and educational site for kid's regarding health and other issues that concern them.  

Here you will find complete information on the many programs offered to kidney patients, their family and friends, renal professionals, and the general public.  Please call the Foundation office at 216-771-2700.  Office hours are 8:30am - 4:30pm, Monday - Friday. 

www.kfohio.org

Provides support and resources for people with kidney disease, and their families and friends."

http://www/kidneydirections.com

Life Options Rehabilitation Program 1-800-468-7777

"LORAC is a group of health care professionals, patients, business persons, and researchers concerned with helping dialysis patients and their families." They provide booklets of information about dialysis and how if will affect patient and their families lives.

National Kidney Foundation 1-800-622-9010

"Seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation."

National Kidney and Urologic Disease Information Clearinghouse 1-301-654-4415

"The clearinghouse provides information about diseases of the kidneys and urologic system to people with kidney and urologic disorders and to their families, health care professional, and the public."

 

One Step At A Time A Guide for Parents Navigating the Hospital Experience With Their Child http://www.journeytowardhealing.com/

 

Polycystic Kidney Disease Research Foundation 

Their purpose is to bridge the gap between ignorance and knowledge about PKD by promoting programs of research and fostering awareness among medical professionals, corporations, foundations and the general public. We provide the only regular source of PKD information and offer the only complete forum for patient education.

www.pkdcure.org

"Utlilizes the vast resources of the Internet to open avenues of communication among individuals and organizations involved in the care of patients with kidney disease."

The Tri-State Renal Network 1-800-456-6919

"A not-for-profit organization which monitors quality of dialysis care on Ohio."

COOKBOOKS

C/o Oregon Council on Renal Nutrition, PO Box 29133, Portland, OR 92710

Everyday Eating: A Cookbook for The Dialysis Patient and Family ($7.50) 1-312-663-3103

C/o Sharon Stall, Lenox Hill Hospital Dialysis, 100 E. 77^th Street, New York, NY 10021

Menu Magic ($15.00)

C/o Council on Renal Nutrition of Dallas/Ft. Worth, NFK Texas, 13500 Midway Rd., Suite 101, Dallas, TX 75244

The Renal Family Cookbook ($5.95)

Multimedia Publications, 3995 Bathurst Street, #301, Downsview, Ontario, Canada M3H5V3

The Renal Gourmet ($21.00) 1-800-445-5653

A Search for Answers: A Guide for Dialysis Patients and Transplant Recipients. ($10.00)

Arizona Kidney Foundation, 4019 N. 44^th Street, Suite 201, Phoenix, AZ 85018

What can I Eat? A Nutritional Guide for Persons with Kidney Disease ($9.65) 1-310-454-4916