RESOURCE GUIDE FOR RENAL/KIDNEY DISEASE
On this page:
Deepa Chand, M.D.
Medical Director, Pediatric Dialysis
JULIE CORDER, CPNP
Allie Sakai, LISW
Office (216) 444-1757
Fax (216) 444-9050
Excellent website for all health concerns. Go to health topics and kidney disease--there's a special section for pediatric patients.
American Association for Kidney Patients 1-800-749-AAKP
Provides education, support, and advocacy services to kidney patients and families.
Distributes AAKP Bulletin (newsletter)WWW.AAKP.ORG
American Kidney Fund 1-800-638-8299
Provides funds to needy kidney patients. Grants to help pay for medication, transportation, special diets, supplies. Can help pay for dialysis while on vacation.WWW.AKFINC.ORG
The Children's Organ Transplant Association provides fundraising assistance for children needing life-saving transplants and promotes organ, marrow and tissue donation.
Kidney Disease Foundation
"Attends to the well-being of needy people stricken with end-stage-renal-disease through subsidized hemodialysis treatment."WWW.KDF.ORG
Fun and educational site for kid's regarding health and other issues that concern them.
Kidney Foundation of Ohio
Here you will find complete information on the many programs offered to kidney patients, their family and friends, renal professionals, and the general public. Please call the Foundation office at 216-771-2700. Office hours are 8:30am - 4:30pm, Monday - Friday.
Provides support and resources for people with kidney disease, and their families and friends."
Kidney and Urology Foundation
The Kidney & Urology Foundation of America is a national, not-for=profit organization dedicated to helping people avoid the debilitating effects of kidney and urologic diseases-disorders affecting as many as 7- million Americans today.
Life Options Rehabilitation Program 1-800-468-7777
"LORAC is a group of health care professionals, patients, business persons, and researchers concerned with helping dialysis patients and their families." They provide booklets of information about dialysis and how if will affect patient and their families lives.WWW.LIFEOPTIONS.ORG
National Kidney Foundation 1-800-622-9010
"Seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation."WWW.KIDNEY.ORG
National Kidney and Urologic Disease Information Clearinghouse 1-301-654-4415
"The clearinghouse provides information about diseases of the kidneys and urologic system to people with kidney and urologic disorders and to their families, health care professional, and the public."WWW.NIDDK.NIH.GOV
One Step At A Time
A Guide for Parents Navigating the Hospital Experience With Their Child
Polycystic Kidney Disease Research Foundation
Their purpose is to bridge the gap between ignorance and knowledge about PKD by promoting programs of research and fostering awareness among medical professionals, corporations, foundations and the general public. We provide the only regular source of PKD information and offer the only complete forum for patient education.
"Utlilizes the vast resources of the Internet to open avenues of communication among individuals and organizations involved in the care of patients with kidney disease."WWW.RENALNET.ORG
The Tri-State Renal Network 1-800-456-6919
"A not-for-profit organization which monitors quality of dialysis care on Ohio."WWW.THERENALNETWORK.ORG
United Network for Organ Sharing (UNOS) 1-804-330-8500WWW.UNOS.ORG
Creative Cooking for Renal Diabetic Diets ($16.45) 1-800-850-6987
Cooking the Renal Way ($10.00)
C/o Oregon Council on Renal Nutrition, PO Box 29133, Portland, OR 92710
Everyday Eating: A Cookbook for The Dialysis Patient and Family ($7.50) 1-312-663-3103
The Gourmet Renal Nutrition Cookbook
C/o Sharon Stall, Lenox Hill Hospital Dialysis, 100 E. 77th Street, New York, NY 10021
Menu Magic ($15.00)
C/o Council on Renal Nutrition of Dallas/Ft. Worth, NFK Texas, 13500 Midway Rd., Suite 101, Dallas, TX 75244
The Renal Family Cookbook ($5.95)
Multimedia Publications, 3995 Bathurst Street, #301, Downsview, Ontario, Canada M3H5V3
The Renal Gourmet ($21.00) 1-800-445-5653
A Search for Answers: A Guide for Dialysis Patients and Transplant Recipients. ($10.00)
Arizona Kidney Foundation, 4019 N. 44th Street, Suite 201, Phoenix, AZ 85018
What can I Eat? A Nutritional Guide for Persons with Kidney Disease ($9.65) 1-310-454-4916
One week in the summer for northeast Ohio pediatric patients on dialysis or kidney transplant recipients. For more information, call the Kidney Foundation of Ohio: 216-771-2700.
KAPPA KIDNEY CAMP
Kidney Foundation of Ohio Kids ages 8 to 18 throughout the NKF of Ohio Service area (all 88 counties of Ohio) who have irreversible chronic kidney failure, concurrently on dialysis, or who have had a kidney transplant are invited to attend the National Kidney Foundation of Ohio’s Kappa Kidney Camp. For more information or to register for camp contact us at firstname.lastname@example.org or 1-800-242-2133.
This resource page was compiled by Noelle Sheeran from Social Work. If you have any problems with the links or would like to suggest another resource, please contact Sally Siggins, (216)444-6891 or
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