Inherited Colorectal Cancer Registries
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Familly Matters Fall 1998

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What’s New
Patients Needed to Enroll in NCI National Registry

The Cleveland Clinic is one of only six U.S. centers working together to develop a national colorectal cancer registry, supported by The National Cancer Institute. We hope to identify more than 1,200 families with two cases of colorectal cancer and about 400 families with at least three cases of colorectal cancer. The Clinic is the coordinating center for genetic counseling and the only site to develop a registry of high-risk patients. If you or someone you know is interested in enrolling, please call 216/444-6470 or 800/998-4785.

Network Will Increase Resources, Improve Treatment
The Clinic’s Jagelman Registry is in the initial stage of creating a national polyposis network of colorectal cancer registries with other centers of colorectal expertise. Under the leadership of the Jagelman Registry, this network will allow physicians and researchers to collaborate on research and patient care on a much larger scale. The goal of this endeavor is to establish the best possible patient care and education, with continuity throughout the country.

Look to future issues of Family Matters for updates on this network.

Cancer Perspectives
The most recent issue of this newsletter, from the Cleveland Clinic Taussig Cancer Center, focuses on inherited colorectal cancer. It also contains valuable information on genetics, risk assessment and constructing a family medical tree. For your free copy, call 216/444-8919 or 800/545-7718.

 


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