Recent Publications

2007

  • Chwang E, Landy DC, Sharp RR. 2007. Views regarding the training of ethics consultants: a survey of physicians caring for ICU patients. Journal of Medical Ethics 33: 320-324.
  • Fernandez CV, Santor D, Weijer C, Strahlendorf C, Moghrabi A, Pentz R, Gao J, Kodish E. 2007. "The Return of Research Results to Participants: Pilot Questionnaire of Adolescents and Parents of Children with Cancer". Pediatric Blood and Cancer, 48:441-6.
  • Ford PJ, DeMarco JP, 2007. "Brains, Ethics, and Elective Surgeries: Emerging Ethics Consultation." Ethics and Medicine, 23(1): 39-45.
  • Ford PJ.  2007. "Neurosurgical Implants: Clinical Protocol Considerations." Cambridge Quarterly of Healthcalre Ethics, 16(3): 310-313.
  • Ford PJ. 2007. "Cardiac Events and Brain Injury: Ethical Implications," Cleveland Clinic Journal of Medicine, 74:S138-141.
  • Ford PJ, Boissy AR. 2007. “Ameliorating and Exacerbating: Surgical ‘Prosthesis’ in Addiction.” American Journal of Bioethics (AJOB-Neuroscience),7(1):32-34.
  • Ford PJ, Kubu CS. 2007. “Ameliorating and Exacerbating: Surgical ‘Prosthesis’ in Addiction.” American Journal of Bioethics (AJOB-Neuroscience), 7(1):32-34.
  • Ford PJ, DeMarco JP, Toms SA. 2007. “Putting A Face On the Definition of Surgical Success: Ethics and Mismatched Expectations.” Clinical Oncology News. 2(5):1, 45.
  • Foster MW, Sharp RR. 2007. "Share and share alike: deciding how to distribute the scientific and social benefits of genomic data". Nature Reviews Genetics 8.
  • Holm M, Selvan M, Smith M, Markman M, Theriault R, Rodriguez M, Sartin S. 2007. “Quality Improvement for Research: Defining and Supervising QI at The University of Texas M. D. Anderson Cancer Center.” Health Care Quality Improvement:Ethical and Regulatory Issues, eds. Jennings B, Baily M, Bottrell M, Lynn J,145-168.
  • Kubu CS, Ford PJ.  2007. "Ethics in the Clinical Application of Neural Implants" Cambridge Quarterly of Healthcare Ethics, 16(3): 319-323
  • Simon C, Eder M, Kodish E, Siminoff L. 2007. "Altruistic Discourse in the Pediatric Informed Consent Setting: Ethical Implications." American Journal of Bioethics (Target Article). 6:40-7.
  • Smith M, Gremillion G, Slomka J, Warneke C. 2007. “Texas Hospitals’ Experience With the Texas Advance Directives.” Critical Care Medicine, 35(5): 1271-1276
  • Smith M, Flamm A, Slieper C. 2007. “Ethical Issues in the Cancer Pain Patient.” Cancer Pain Management, eds Fisch M, Burton A, 127-135
  • Smith ML, Weise KL. 2007. “The Goals of Ethics Consultation: Rejecting the Role of ‘Ethics Police’.” American Journal of Bioethics, 7(2):42.
  • Ungar D, Joffe S, Kodish E. 2007. "Children Are Not Small Adults: Documentation of Assent for Research Involving Children." Journal of Pediatrics. 149:S31-S33.
  • Wolpe P, Ford P, Harhay M. 2007. “Ethical Issues in Deep Brain Stimulation” in Deep Brain Stimulation for Parkinson’s Disease. Eds Baltuch G, Stern M. Taylor & Francis.
  • Yarborough M, Sharp RR. 2007. Bioethics consultation and patient advocacy organizations: expanding the dialogue about professional conflicts of interest. Cambridge Quarterly of Healthcare Ethics 16: 74-81.

2006

  • Abbe M, Simon C, Angiolillo A, Ruccione K, Kodish E. 2006. "A Survey of Language Barriers from the Perspective of Pediatric Oncologists, Interpreters, and Parents." Pediatric Blood Cancer; 47:819-24.
  • Barfield R, Kodish E. 2006. “Pediatric Ethics in the Age of Molecular Medicine” pp639-648, Pediatric Clinics of North America.
  • Barfield R, Kodish E. 2006. “Ethical Considerations in Pediatric Hematopoietic Stem-Cell Transplantation”, Pediatric Stem-Cell Transplantation. R. Kline, ed., Chapter 13, pp251-70.
  • Bramstedt KA, Ford PJ. 2006. “Protecting Human Subjects: Psychogenic dystonia as an exclusion criterion for neurosurgical dystonia trials.” Contemporary Clinical Trials, 27: 161-164.
  • Carter B, Hubble C, Weise KL. 2006. “Palliative Medicine in Neonatal and Pediatric Intensive Care.” Child Adolesc Psychiatr Clin N Am, 15:759-77
  • DeMarco JP, Ford PJ. 2006. “Balancing in Ethical Deliberation: Superior to Specification and Casuistry.” Journal of Medicine and Philosophy, 31(5): 483-497.
  • Ford PJ, Henderson JM. 2006. “Ethics of Neuromodulation.” NANS News (Newsletter for the American Society for Neuromodulation) 1(1):6.
  • Ford PJ, Kubu CS. 2006. “Stimulating Debate: Ethics in a Multidisciplinary Functional Neurosurgery Committee.” Journal of Medical Ethics, 32(2): 106-109.
  • Ford PJ, Henderson JM. 2006. “The Clinical and Research Ethics of Neuromodulation” Neuromodulation, 9(4): 249-252. [Expanded version of editorial in NANS News, 1(1).]
  • Ford PJ. 2006. “From Treatment to Enhancement in Deep Brain Stimulation: A Question of Research Ethics.” The Pluralist, 1(2):35-44.
  • Foster MW, Mulvihill JJ, Sharp RR. 2006. Investments in cancer genomics: who benefits and who decides? American Journal of Public Health 96: 1960-1964.
  • Foster MW, Royal CDM, Sharp RR. 2006. The routinization of genomics and genetics: implications for ethical practices. Journal of Medical Ethics 32: 635-638.
  • Foster MW, Sharp RR. 2006. Ethical issues in medical-sequencing research: implications of genotype-phenotype studies for individuals and populations. Human Molecular Genetics 15: R45-49.
  • Gordon E, Yamokoski A, Kodish E. "Children as Guinea Pigs: Reflections on a Metaphor." 2006. IRB: Ethics and Human Subjects Research; 28:12-19.
  • Greenley RN, Drotar D, Eder M, Zyzanski SJ, Kodish E. 2006. "Stability of Parental Understanding of Randomization in Childhood Leukemia Trials: An Empirical Examination of Informed Consent." Journal of Clinical Oncology; 24:891-7.
  • Illes J., Kirschen MP, Edwards E, Stanford LR, Bandettini P, Daniel M, Ford PJ, et al. 2006. “Incidental Findings in Brain Imaging Research.” Science, 311:783-784.
  • Joffe S, Fernandez C, Pentz RD, Ungar DR, Mathew NA, Alessandri AJ, Woodman CL, Singer DA, Kodish E. 2006. "Involving Children with Cancer in Decision-Making About Research Participation." Journal of Pediatrics, Vol 149(6).
  • Moskowitz S, Ford PJ. 2006. “Ethical Issues Associated with Health Care Industry Representatives in the Operating Room.” SpineLine, 4(5):38-40.
  • Paradis C. 2006. “Equipoise in the Real World.” American Journal of Bioethics, 6(4):61-63.
  • Paradis C. 2006. “Informing Consent: Analogies to History-Taking.” American Journal of Bioethics, 6(1):24-26.
  • Resnik DB, Sharp RR. 2006. Protecting third parties in human subjects research. IRB: Ethics & Human Research 28, no. 4: 1-7.

  • Sharp RR, Yarborough M. 2006. Informed trust and the financing of biomedical research. Journal of Law, Medicine & Ethics 34: 460-464 .
  • Silver K, Sharp RR. 2006. Ethical considerations in testing workers for the –Glu69 marker of genetic susceptibility to chronic beryllium disease. Journal of Occupational and Environmental Medicine 48: 434-443.

  • Simon C, Zyzanski S, Durand E, Jiminez X, Kodish E. 2006. "Interpreted Informed Consent Among Spanish-Speaking Families with Cancer." Journal of Health Communication. 11:509-522.
  • Smith M. 2006. “Should Possible Disparities and Distrust Trump Do-No-Harm?” The American Journal of Bioethics, 6(5): 28-30.
  • Traore F, O'Riordan MA, Myers C, Groth K, Hoff A, Angiolillo A, Rheingold S, Drotar D, Kodish E. 2006. "How Low is Too Low?  Use of Cluster Analysis to Define Low Levels of Mercaptopurine Metabolites." Pediatric Blood & Cancer. 46:187-192.
  • Weise KL. 2006. “Pediatric Ethics: Setting an Agenda for the Future.” Bio Quarterly, 16(4)10-11.
 

2005

  • Brody BA, McCullough LB, Sharp RR. 2005. Consensus and controversy in clinical research ethics. JAMA 294: 1411-1414.
  • Cuttler L, Whittaker JL, Kodish ED. 2005. "The Overweight Adolescent:Clinical and Ethical Issues in Intensive Treatments for Pediatric Obesity." J Pediatr, 146(4):559-64.
  • Davis MP, Ford PJ. 2005. “Palliative Sedation Definition, Practice, Outcomes, and Ethics,” Letter. Journal of Palliative Medicine, 8(4): 699-710.
  • Fernandez CV, Taweel S, Kodish ED, Weijer C. 2005. "Disclosure of Research Results to Research Participants: Needs and Attitudes of Adolescents and Parents." Pediatrics & Child Health, 10(6):332-334.
  • Ford PJ, Nicoletti TP. 2005. “My Organs, My Life.” American Journal of Bioethics, 5(4): 30-31
  • Ford PJ, Kubu CS. 2005. “Caution in Leaping from Neuroimaging to Neuromodulation.” American Journal of Bioethics, 5(2): 23-25.
  • Ford PJ, Henderson J. 2005. “Neuroethics in the Operating Room: functional neurosurgical interventions,” in Neuroethics: Defining the issues in Theory, Practice and Policy, ed. Judy Illes. Oxford University Press: 213-228.
  • Ford PJ. 2005. “Misjudging Needs in an Ethic Consultation: A messy spiral of complexity.” Journal of Clinical Ethics, 16(3): 206-211.
  • Ford PJ, Dudzinski DM. 2005. “Specters, Traces, and Regrets in Ethics Consultation.” Journal of Clinical Ethics, 16(3): 193-195.
  • Ford PJ, Fraser TG, Davis MP, Kodish ED. 2005. “Anti-infective Therapy at the End of Life: Ethical Decision Making in Hospice Eligible Patients.” Bioethics, 19(4), 380-392. (Reprinted in Ethics and Infectious Disease. 2006. eds Selgelid MJ, Battin MP, Smith CB. Blackwell Publishers)
  • Foster MW, Sharp RR. 2005. The value of community-specific investigations of genetic and environmental contributors to complex disease. Environmental Health Perspectives 113: 119-122.
  • Foster MW, Sharp RR. 2005. Will investments in biobanks, prospective cohorts, and markers of common patterns of variation benefit other populations for drug response and disease susceptibility gene discovery? The Pharmacogenomics Journal 5: 75-80.
  • Kodish E. (ed) 2005. Ethics and Research with Children: A Case Based Approach, Oxford University Press.
  • Miller V, Drotar D, Burant C, Kodish E. 2005. "Clinician-Parent Communication During Informed Consent for Pediatric Leukemia Trials". Journal of Pediatric Psychology 30(3): 219-229.
  • Resnik DB, Zeldin DC, Sharp RR. 2005. Research on environmental health interventions: ethical problems and solutions. Accountability in Research 12: 69-102.

  • Simon CM, Kodish ED. 2005. "'Step Into My Zapatos, Doc': Understanding and Reducing Communication Disparities in the Multicultural Informed Consent Setting." Persp Biol Med, 48(1 Suppl):S123-38.
  • Smith M, Flamm A, Pawlick T. 2005.  “Clinical Trials in Oncology: Ethical Issues.” Acute Care of the Cancer Patient, 165-175.
  • Smith M. 2005. “Case Commentary 20: When Bad Things Happen to Good Doctors.” Moral Dilemmas in Community Health Care, 361-363.
  • Smith M. 2005. “Case Commentary 6: Must Health Care Professionals Always Tell the Truth?” Moral Dilemmas in Community Health Care, 123-125.
  • Weise KL. 2005. “The Spectrum of Our Obligations: DNR in Public Schools.” Am Journal of Bioethics, 5(1) 81.
  • Weise KL. 2005. “How Do We Deal With the Patient Who Asks for Nontraditional, Complimentary, or Alternative Therapies?”, “How Do We Manage and Control Pain at the End of Life?, What is the ‘Rule of Double Effect’? Critical Care Ethics: A Practice Guide from the ACCM Ethics Committee. Eds., Thompson DR, Kummer HB. Society of Critical Care Medicine.

2004

 
  • Angiolillo AL, Simon C, Kodish E, Lange B, Noll RB, Ruccione K, Matloub Y. 2004. “Staged Informed Consent for a Randomized Clinical Trial in Childhood Leukemia: Impact on the Consent Process.” Pediatric Blood and Cancer. 42(5):433-7.
  • Drotar D, Miller V, Willard V, Anthony K, Kodish E. 2004.  "Correlates of Parental Participation During Informed Consent for Randomized Clinical Trials in the Treatment of Childhood Leukemia."  Ethics and Behavior. 14(1):1-15.
  • Ford PJ, Blixen CE, Wylie E, Bingaman W. 2004. “Ethics Consultations for Epilepsy Surgery Candidates: A 15-year retrospective review,” Abstract. Neurosurgery, 55(2): 464-465.
  • Ford PJ. 2004. “Hot Topics in Neuro-ethics,” Bio Quarterly, 15(1): 1-4.
  • Foster MW, Sharp RR. 2004. Beyond race: toward a whole-genome perspective on human populations and genetic variation. Nature Reviews Genetics 5: 790-796.
  • Hinshaw M, Trowers AB, Kodish E, Kuerbitz S, Shurin S, Wood GS.  2004. “Three Children with CD30 Cutaneous Anaplastic Large Cell Lymphomas Bearing the Translocation,” Pediatric Dermatol. 21(3):212-7, May-June.
  • Hwang J, Smith M, Flamm A. 2004. “Challenges in Outpatient End-of-Life Care: Wishes to Avoid Resuscitation.” The Journal of Clinical Oncology, 22(22):4643-4645.
  • Kodish E, Eder M, Noll RB, Ruccione K, Lange B, Angiolillo A, Pentz R, Zyzanski S, Siminoff LA, Drotar D. 2004.  "Communication of Randomization in Childhood Leukemia Trials". JAMA, 29(4): 470-5.
  • Kodish E, Lyren A. 2004. “Overview of Ethical Issues in Pediatrics” pp2017-2019, Encyclopedia of Bioethics. Vol 4.
  • Marsick R, Kodish E. 2004. “Pediatric Genetic Testing” pp1025-1027, Encyclopedia of Bioethics. Vol 2.
  • Miller VA, Drotar D, Kodish E. 2004. "Children's Competence for Assent and Consent: A Review of Empirical Findings." Ethics and Behavior, 14(3): 255-95.
  • Sharp RR, Yudell MA, Wilson SH. 2004. Shaping science policy in the age of genomics. Nature Reviews Genetics 5: 311-316.
  • Simon C, Kodish E. 2004. “Cancer, Ethical Issues Related to Diagnosis and Treatment” pp341-347, Encyclopedia of Bioethics. Vol 2.
  • Simon CM, Siminoff LA, Kodish E, Burant C. 2004. “Comparison of the Informed Consent Process for Randomized Clinical Trials in Pediatric and Adult Oncology.” Journal of Clinical Oncology. 22(13):2708-17.
  • Smith M. 2004. “Jehovah’s Witness Refusal of Blood Products.” Encyclopedia of Bioethics, 3rd Ed., 1341-1346.
  • Smith M, Bisanz A, Kempfer A, Adams B, Candelari T, Blackburn R. 2004. “Criteria for Determining the Appropriate Method for an Ethics Consultation.” HEC Forum, 16(2):95-113.
  • Weise KL. 2004. “Finding Our Way.” Hastings Center Report, 34(4).

 

 

 

 

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