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Cleveland Clinic Bioethics Department

 
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Publications

 2007

Adamson PC, Paradis C, Smith ML. All for One or One for All.  The Hastings Center Report 2007; 37(4):13-5.

 

DeMarco JP, Ford PJ. 2007. “Hospice Choices: Continuing Aggressive Caring.” Clinical Oncology News 2(11): 1, 17.

 

DeMarco JP, Ford PJ. 2007. “End-of-Life Care: Ethics of Futility.” Clinical Oncology News 2(9): 1, 22-23.

 

Eder M, Yamokoski A, Wittmann P, Kodish E. Improving informed consent: Suggestions from parents of children with leukemia. Pediatrics 2007; 119:e849-e859.

Esteves SC. Sharma RK. Thomas AJ Jr. Agarwal A. Evaluation of acrosomal status and sperm viability in fresh and cryopreserved specimens by the use of fluorescent peanut agglutinin lectin in conjunction with hypo-osmotic swelling test. International Braz J Urol. 33(3):364-74, 2007

 

Falcone T and Farrell R. Rev of  Surrogacy and the Politics of Reproduction, by Susan Markens. New England Journal of Medicine, 358:651-652.

 

Farrell R. The HPV vaccine: A dilemma for patient, parent, and physician. Cleveland Clinic OB/GYN Perspectives. Fall 2007: 11.

 

Farrell R and Bradley L. Chapter 4: “Informed Consent” in Office Hysteroscopy and the Evaluation of the Uterine Cavity. Eds. Eds. L.D. Bradley and T. Falcone. Elsevier (in press).

 

Farrell R and Rome E. Integrating Adolescents into a Successful HPV Vaccine Strategy:
A Pivotal Factor in Immunization Success. Pediatrics 2007; 120:434-7.

 

Farrell R and Wallach E. Chapter 2: “Ethics and Pelvic Surgery” in TeLinde’s Operative Gynecology, 10th Edition. Eds J. Rock and J. Thompson. Philadelphia: Lippincott, Williams and Wilkins (in press).

 

Fernandez CV, Santor D, Weijer C, Strahlendorf C, Moghrabi A, Pentz R, Gao J, Kodish E. The return of research results to participants: Pilot questionnaire of adolescents and parents of children with cancer. Pediatr Blood & Cancer. 2007:48:441-6.

Ford PJ. 2007. “Cardiac Events and Brain Injury: Ethical Implications,” Cleveland Clinic Journal of Medicine, 74:S138-141.

 

Ford PJ. 2007. “Neurosurgical Implants: Clinical Protocol Considerations.” Cambridge Quarterly of Healthcare Ethics, 16(3): 310-313.

Ford PJ. 2007. “Professional Clinical Ethicist: Taking the role seriously.” Journal of Clinic Ethics.

 

Ford PJ, Boissy AR. 2007. “Different Questions, Different Goals.” American Journal of Bioethics, 7(2): 46-47.

 

Ford PJ, Boulis N, Montgomery E, Rezai A. 2007. “Ethical Dilemmas When a Patient Intraoperatively Revokes Consent.” Neuromodulation, 10(4): 259-262.

 

 

Ford PJ, Boulis N. 2007. “Surgical Tourism: Patients Going Abroad.” Cleveland Clinic Alumni Connection 28(2): 14-15.

 

Ford PJ, DeMarco JP. 2007. “Advance Directives in End of Life Care.” Clinical Oncology News 2(10): 1, 24-25.

 

Ford PJ, DeMarco JP. 2007. “State of the Art: Ethics in End of Life Oncology Care.” Clinical Oncology News 2(8): 1, 28-29.

 

Ford PJ, DeMarco JP, Toms SA. 2007. “Putting a Face on the Definition of Surgical Success: Ethics and mismatched expectations.” Clinical Oncology News 2(5): 1, 45.

 

Ford, PJ, DeMarco, JP. 2007. “Brains, Ethics, and Elective Surgeries: Emerging ethics consultations.” Ethics and Medicine, 23(1).

 

Ford PJ, Farrell R. 2007. “Surgical Tourism: Physicians Going Abroad.” Cleveland Clinic Alumni Connection 28(3): 16-17. 

 

Ford PJ, Farrell R. 2007. Surgical Tourism: Physicians Going Abroad. Cleveland Clinic Alumni Connection. 28(3): 16-17. 

 

Ford PJ, Kubu CS. 2007. “Ameliorating and Exacerbating: Surgical ‘Prosthesis’ in Addiction.” American Journal of Bioethics (AJOB-Neuroscience), 7(1):32-34.

 

Ford PJ, Weise KL. 2007. “Stunting Growth for Ease of Care.” Cleveland Clinic Alumni Connection 28(1): 10.

 

Foster MW, Sharp RR. Research with identifiable and targeted communities. Emanuel EJ, Crouch RA, Grady C, Lie R, Miller F, Wendler D, eds., The Oxford Textbook of Clinical Research Ethics, London: Oxford University Press (2007): 475-80.

 Foster MW, Sharp RR. Share and share alike: deciding how to distribute the scientific and social benefits of genomic data. Nature Reviews Genetics 8 (2007): 633-639.

 

Hazen RA, Drotar D, Kodish E. The Role of the Consent Document for Pediatric Leukemia Trials. Contemporary Clinical Trials 2007; 28:401-8.

Hazen R, Greenley R, Drotar D, Kodish E.  Recommending Randomized Trials for Pediatric Leukemia: Observer and Physician Report of Recommendations. Journal of Empirical Research on Human Research Ethics 2007; 49-55.

 

Holm M, Selvan M, Smith M, Markman M, Theriault R, Rodriguez M, Martin S. Quality Improvement or Research: Defining and Supervising QI at The University of Texas M. D. Anderson Cancer Center. In: Health Care Quality Improvement: Ethical and Regulatory Issues, Jennings B, Baily M, Bottrell M, Lynn J (eds), The Hastings Center, Garrison, New York, 2007, pp. 145-168.

Kubu CS, Ford PJ. 2007. “Ethics in the Clinical Application of Neural Implants” Cambridge Quarterly of Healthcare Ethics, 16(3): 319-323.

 

Lyren AL, Ford PJ. 2007. “Models of Ethics Consultation in Pediatrics.” Clinical Pediatrics, 46(9): 771-776. 

 

Malbasa T, Kodish E, Santacroce S. Adolescent Adherence to Oral Therapy for Leukemia: A Focus Group Study.  Journal of Pediatric Oncology Nursing 2007: 24:139-51.

 

Marmar JL. Agarwal A. Prabakaran S. Agarwal R. Short RA. Benoff S. Thomas AJ Jr. Reassessing the value of varicocelectomy as a treatment for male subfertility with a new meta-analysis. Fertil Steril. 88(3):639-48, 2007.

 

Phelan MP, Paradis C, Darr A et al. A Pilot Study to Examine Research Subjects’ Perception of Participating in Research in the Emergency Department. Annals Emergency Med 2007; 50(3):S47.

 

Sharp RR, Barrett JC. The Environmental Genome Project: ethical, legal, and social implications [reproduced article]. In Bayer R, Gostin LO, Jennings B, Steinbock B, eds., Public Health Ethics: Theory, Policy, and Practice, London: Oxford University Press (2007).

 

Sharp RR, Foster MW. Grappling with groups: protecting collective interests in biomedical research. Journal of Medicine and Philosophy 32 (2007): 321-337.

 

Siemionow M, Bramstedt K, Kodish E.  Ethical Issues in Face Transplantation.  Current Opinion in Organ Transplantation. 2007; 12:193-197.

 

Smith M, Gremillion G, Slomka J, Warneke C.  Texas Hospitals’ Experience with the Texas Advance Directives Act. Critical Care Medicine 2007; 35(5): 1271-1276.

 

Smith M, Flamm A, Slieper C. Ethical Issues in the Cancer Pain Patient. In: Cancer Pain Management, Fisch M, Burton A (eds), McGraw-Hill Medical, New York, pp. 127-135, 2007.

Smith, M., Kodish E. Helping patients decide whether to participate in clinical trials. Virtual Mentor 9:16-20, 2007.

Smith M, Weise K. The Goals of Ethics Consultation: Rejecting the Role of “Ethics Police.” The American Journal of Bioethics 2007(2): 42.

 

Wolpe P, Ford P, Harhay M. 2007. “Ethical Issues in Deep Brain Stimulation” in Deep Brain Stimulation for Parkinson’s Disease. eds Baltuch G, Stern M. Taylor & Francis.

Yarborough M, Sharp RR. Restoring and preserving trust in biomedical research [reproduced article]. In Mallon WT, ed., Managing the Research Enterprise. Washington, DC: Association of American Medical Colleges (2007).

 

2006

 

Abbe M, Simon C, Angiolillo A, Ruccione K, Kodish E. 2006. "A Survey of Language Barriers from the Perspective of Pediatric Oncologists, Interpreters, and Parents." Pediatric Blood Cancer; 47:819-24.

 

Barfield R, Kodish E. 2006. “Pediatric Ethics in the Age of Molecular Medicine” pp639-648, Pediatric Clinics of North America.

 

Barfield R, Kodish E. 2006. “Ethical Considerations in Pediatric Hematopoietic Stem-Cell Transplantation”, Pediatric Stem-Cell Transplantation. R. Kline, ed., Chapter 13, pp251-70.

 

Bramstedt KA, Ford PJ. 2006. “Protecting Human Subjects: Psychogenic dystonia as an exclusion criterion for neurosurgical dystonia trials.” Contemporary Clinical Trials, 27: 161-164.

 

Carter B, Hubble C, Weise KL. 2006. “Palliative Medicine in Neonatal and Pediatric Intensive Care.” Child Adolesc Psychiatr Clin N Am, 15:759-77

 

DeMarco JP, Ford PJ. 2006. “Balancing in Ethical Deliberation: Superior to Specification and Casuistry.” Journal of Medicine and Philosophy, 31(5): 483-497.

 

Ford PJ, Henderson JM. 2006. “Ethics of Neuromodulation.” NANS News (Newsletter for the American Society for Neuromodulation) 1(1):6.

 

Ford PJ, Kubu CS. 2006. “Stimulating Debate: Ethics in a Multidisciplinary Functional Neurosurgery Committee.” Journal of Medical Ethics, 32(2): 106-109.

 

Ford PJ, Henderson JM. 2006. “The Clinical and Research Ethics of Neuromodulation” Neuromodulation, 9(4): 249-252. [Expanded version of editorial in NANS News, 1(1).]

 

Ford PJ. 2006. “From Treatment to Enhancement in Deep Brain Stimulation: A Question of Research Ethics.” The Pluralist, 1(2):35-44.

 

Gordon E, Yamokoski A, Kodish E. "Children as Guinea Pigs: Reflections on a Metaphor." 2006. IRB: Ethics and Human Subjects Research; 28:12-19.

 

Greenley RN, Drotar D, Eder M, Zyzanski SJ, Kodish E. 2006. "Stability of Parental Understanding of Randomization in Childhood Leukemia Trials: An Empirical Examination of Informed Consent." Journal of Clinical Oncology; 24:891-7.

 

Illes J., Kirschen MP, Edwards E, Stanford LR, Bandettini P, Daniel M, Ford PJ, et al. 2006. “Incidental Findings in Brain Imaging Research.” Science, 311:783-784.

 

Joffe S, Fernandez C, Pentz RD, Ungar DR, Mathew NA, Alessandri AJ, Woodman CL, Singer DA, Kodish E. 2006. "Involving Children with Cancer in Decision-Making About Research Participation." Journal of Pediatrics, Vol 149(6).

 

Moskowitz S, Ford PJ. 2006. “Ethical Issues Associated with Health Care Industry Representatives in the Operating Room.” SpineLine, 4(5):38-40.

 

Paradis C. 2006. “Equipoise in the Real World.” American Journal of Bioethics, 6(4):61-63.

 

Paradis C. 2006. “Informing Consent: Analogies to History-Taking.” American Journal of Bioethics, 6(1):24-26.

 

Simon C, Zyzanski S, Durand E, Jiminez X, Kodish E. 2006. "Interpreted Informed Consent Among Spanish-Speaking Families with Cancer." Journal of Health Communication. 11:509-522.

 

Smith M. 2006. “Should Possible Disparities and Distrust Trump Do-No-Harm?” The American Journal of Bioethics, 6(5): 28-30.

 

Traore F, O'Riordan MA, Myers C, Groth K, Hoff A, Angiolillo A, Rheingold S, Drotar D, Kodish E. 2006. "How Low is Too Low? Use of Cluster Analysis to Define Low Levels of Mercaptopurine Metabolites." Pediatric Blood & Cancer. 46:187-192.

 

Weise KL. 2006. “Pediatric Ethics: Setting an Agenda for the Future.” Bio Quarterly, 16(4)10-11.

 

 

2005

 

Cuttler L, Whittaker JL, Kodish ED. 2005. "The Overweight Adolescent:Clinical and Ethical Issues in Intensive Treatments for Pediatric Obesity." J Pediatr, 146(4):559-64.

 

Davis MP, Ford PJ. 2005. “Palliative Sedation Definition, Practice, Outcomes, and Ethics,” Letter. Journal of Palliative Medicine, 8(4): 699-710.

 

Fernandez CV, Taweel S, Kodish ED, Weijer C. 2005. "Disclosure of Research Results to Research Participants: Needs and Attitudes of Adolescents and Parents." Pediatrics & Child Health, 10(6):332-334.

 

Ford PJ, Nicoletti TP. 2005. “My Organs, My Life.” American Journal of Bioethics, 5(4): 30-31

 

Ford PJ, Kubu CS. 2005. “Caution in Leaping from Neuroimaging to Neuromodulation.” American Journal of Bioethics, 5(2): 23-25.

 

Ford PJ, Henderson J. 2005. “Neuroethics in the Operating Room: functional neurosurgical interventions,” in Neuroethics: Defining the issues in Theory, Practice and Policy, ed. Judy Illes. Oxford University Press: 213-228.

 

Ford PJ. 2005. “Misjudging Needs in an Ethic Consultation: A messy spiral of complexity.” Journal of Clinical Ethics, 16(3): 206-211.

 

Ford PJ, Dudzinski DM. 2005. “Specters, Traces, and Regrets in Ethics Consultation.” Journal of Clinical Ethics, 16(3): 193-195.

 

Ford PJ, Fraser TG, Davis MP, Kodish . 2005. “Anti-infective Therapy at the End of Life: Ethical Decision Making in Hospice Eligible Patients.” Bioethics, 19(4), 380-392. (Reprinted in Ethics and Infectious Disease. 2006. eds Selgelid MJ, Battin MP, Smith CB. Blackwell Publishers)

 

Kodish E. (ed) 2005. Ethics and Research with Children: A Case Based Approach, Oxford University Press.

 

Miller V, Drotar D, Burant C, Kodish E. 2005. "Clinician-Parent Communication During Informed Consent for Pediatric Leukemia Trials". Journal of Pediatric Psychology 30(3): 219-229.

 

Simon CM, Kodish ED. 2005. "'Step Into My Zapatos, Doc': Understanding and Reducing Communication Disparities in the Multicultural Informed Consent Setting." Persp Biol Med, 48(1 Suppl):S123-38.

 

Smith M, Flamm A, Pawlick T. 2005. “Clinical Trials in Oncology: Ethical Issues.” Acute Care of the Cancer Patient, 165-175.

 

Smith M. 2005. “Case Commentary 20: When Bad Things Happen to Good Doctors.” Moral Dilemmas in Community Health Care, 361-363.

 

Smith M. 2005. “Case Commentary 6: Must Health Care Professionals Always Tell the Truth?” Moral Dilemmas in Community Health Care, 123-125.

 

Weise KL. 2005. “The Spectrum of Our Obligations: DNR in Public Schools.” Am Journal of Bioethics, 5(1) 81.

 

Weise KL. 2005. “How Do We Deal With the Patient Who Asks for Nontraditional, Complimentary, or Alternative Therapies?”, “How Do We Manage and Control Pain at the End of Life?, What is the ‘Rule of Double Effect’? Critical Care Ethics: A Practice Guide from the ACCM Ethics Committee. Eds., Thompson DR, Kummer HB. Society of Critical Care Medicine.

 

2004

 

Angiolillo AL, Simon C, Kodish E, Lange B, Noll RB, Ruccione K, Matloub Y. 2004. “Staged Informed Consent for a Randomized Clinical Trial in Childhood Leukemia: Impact on the Consent Process.” Pediatric Blood and Cancer. 42(5):433-7.

 

Drotar D, Miller V, Willard V, Anthony K, Kodish E. 2004. "Correlates of Parental Participation During Informed Consent for Randomized Clinical Trials in the Treatment of Childhood Leukemia." Ethics and Behavior. 14(1):1-15.

 

Ford PJ, Blixen CE, Wylie E, Bingaman W. 2004. “Ethics Consultations for Epilepsy Surgery Candidates: A 15-year retrospective review,” Abstract. Neurosurgery, 55(2): 464-465.

 

Ford PJ. 2004. “Hot Topics in Neuro-ethics,” Bio Quarterly, 15(1): 1-4.

 

Hinshaw M, Trowers AB, Kodish E, Kuerbitz S, Shurin S, Wood GS. 2004. “Three Children with CD30 Cutaneous Anaplastic Large Cell Lymphomas Bearing the Translocation,” Pediatric Dermatol. 21(3):212-7, May-June.

 

Hwang J, Smith M, Flamm A. 2004. “Challenges in Outpatient End-of-Life Care: Wishes to Avoid Resuscitation.” The Journal of Clinical Oncology, 22(22):4643-4645.

 

Kodish E, Eder M, Noll RB, Ruccione K, Lange B, Angiolillo A, Pentz R, Zyzanski S, Siminoff LA, Drotar D. 2004. "Communication of Randomization in Childhood Leukemia Trials". JAMA, 29(4): 470-5.

 

Kodish E, Lyren A. 2004. “Overview of Ethical Issues in Pediatrics” pp2017-2019, Encyclopedia of Bioethics. Vol 4.

 

Marsick R, Kodish E. 2004. “Pediatric Genetic Testing” pp1025-1027, Encyclopedia of Bioethics. Vol 2.

 

Miller VA, Drotar D, Kodish E. 2004. "Children's Competence for Assent and Consent: A Review of Empirical Findings." Ethics and Behavior, 14(3): 255-95.

 

Simon C, Kodish E. 2004. “Cancer, Ethical Issues Related to Diagnosis and Treatment” pp341-347, Encyclopedia of Bioethics. Vol 2.

 

Simon CM, Siminoff LA, Kodish E, Burant C. 2004. “Comparison of the Informed Consent Process for Randomized Clinical Trials in Pediatric and Adult Oncology.” Journal of Clinical Oncology. 22(13):2708-17.

 

Smith M. 2004. “Jehovah’s Witness Refusal of Blood Products.” Encyclopedia of Bioethics, 3rd Ed., 1341-1346.

 

Smith M, Bisanz A, Kempfer A, Adams B, Candelari T, Blackburn R. 2004. “Criteria for Determining the Appropriate Method for an Ethics Consultation.” HEC Forum, 16(2):95-113.

 

Weise KL. 2004. “Finding Our Way.” Hastings Center Report, 34(4).